World Haemophilia Day 2020: Get + Involved

World Haemophilia Day 2020: Get + Involved

3 years ago

Every year on 17 April World Haemophilia Day is celebrated worldwide to spread the awareness of inherited bleeding disorders.  The day was marked on April 17 in honor of the World Federation of Hemophilia founder Frank Schnabel who suffered from hemophilia and was born on that day.  This is a critical effort from 1989 because with increased awareness comes better diagnosis and access to care for the people who remain without treatment. On April 17, 2020, it is the 30th anniversary of World Haemophilia Day.
The World Federation of Hemophilia (WFH) is an international non-profit organization dedicated to improving the lives of people with hemophilia (also spelled hemophilia) and other genetic bleeding disorders.

The theme for World Haemophilia Day 2020
The theme for World Haemophilia Day in 2020 is “Get+involved”. The aim of the day is Whether you are a patient, a corporate partner, a family member, a volunteer, or a healthcare provider, we want to encourage all of you to help in spreading the awareness of inherited bleeding disorders and the need to make access to adequate care possible everywhere in the whole world. In the current global novel coronavirus (COVID-19) pandemic, WFH recommended to celebrate the day virtually and stay safe.

What is Haemophilia?

Haemophilia is also known as British Royal Disease. It is a genetic disease in which the blood clotting process is interrupted. The disease is mostly found in men, while women are the carriers of the disease.

In fact, if a person suffering from this disease falls into an accident, then his blood keeps on oozing because the blood clots emanating from his wound will not be frozen. In such a situation, anyone can die due to continuous bleeding. Apart from this, sometimes blood starts coming from internal organs like liver, kidney, muscles.

Symptoms of Hemophilia

  1. Excessive bleeding
  2. Frequent blue rashes on any part of the body
  3. Repeated swelling in various joints of the body, especially knees, heel, elbow, etc.
  4. bleeding gums
  5. irritability (in children)

Mayank Jain

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